via Autism United Know a parent with a child who has special needs? I’m sure that something as simple as a phone call or an offer to help will mean so much to them this holiday season!
Category Archives: Special Needs
Holding On- A Guest Post For Caretakers Of Those With Disabilities
This is an excerpt from Caroline McGraw’s book for caregivers, Your Creed of Care: How to Dig for Treasure in People (Without Getting Buried Alive). To receive your complimentary copy of the book via email, visit Caroline’s blog for caregivers, … Continue reading
Something To Think About This Halloween….
Last year on Halloween this was passed around on Facebook and I thought it was really great so I wanted to share it with you all this Halloween: Tonight a lot of creatures will visit your door. Be open minded. … Continue reading
Sensory Processing Disorder: Red Flags
I often get asked how I knew something was “wrong” with the boys and how I knew to push our Doctor to get them evaluated. It’s hard to explain to people because as a mom I just knew. I knew … Continue reading
The Misunderstood Child: A Poem About Children With Hidden Disabilities
I am posting this poem by Kathy Winters since October is National Sensory Awareness Month and I have two handsome little boys in my life with “hidden disabilities” and a number of family friends who have children with sensory issues … Continue reading
Down Syndrome Awareness Month {Guest Post}
The following is a guest post from Julie Cevallos. She is the VP of Marketing for the National Down Syndrome Society and mother of Alec and Nina, who happens to have Down syndrome. October means a lot of things to … Continue reading
Bullying & Autism
Cynthia Lowen, co-filmmaker of the documentary Bully and co-author of The Essential Guide to Bullying: Prevention and Intervention, notes that children with an autism spectrum disorder are more likely to be bullied due to their communication deficits, impaired social interactions … Continue reading
This Is What Autism Looks Like In My Child {A Response To 50 Cent}
{UPDATE: On July 8th, 50 tweeted this: “I realize my autism comments were insensitive, however it was not my intention to offend anyone and for this I apologize.”} Some of you may have heard of rapper 50 Cent’s recent comments … Continue reading
Where Are The Parents? {A Lesson On Not Judging Other Moms & Dads}
{This is a beautifully written post by a mom that was raising a child who was disabled. It had me in tears so I wanted to share it with you all. Reminds us to never judge other parents because we don’t know their situation and what they go through on a daily basis.}
Where Are The Parents? By Sue Stuyvesant, Parent
Hey everyone. For those of you who don’t know me (I’m only an occasional poster) I am mom to Michelle, 9 years old, microcephalic, athetoid/spastic CP, cortical visual impairment, seizure disorder — and CUTE! OK, now for the reason I’m posting.
To make a long story short, earlier this week a question was asked by some nitwit official as to why there weren’t more parents (of special needs kids) involved in the local PTA and other issues that have come up that directly involve our kids. His question, which was passed on to me was, “Where are the parents?” I went home that night, started thinking – and boy was I pi**ed – and banged this “little” essay out the next day on my lunch break. By the way, I took copies of this to the school board meeting that night, gave it to a couple of influential people and it WILL get around………….
Where are the parents?
They are on the phone to doctors and hospitals and fighting with insurance companies, wading through the red tape in order that their child’s medical needs can be properly addressed. They are buried under a mountain of paperwork and medical bills, trying to make sense of a system that seems designed to confuse and intimidate all but the very savvy.
Where are the parents?
They are at home, diapering their 15 year old son, or trying to lift their 100 lb. daughter onto the toilet. They are spending an hour at each meal to feed a child who cannot chew, or laboriously and carefully feeding their child through a g-tube. They are administering medications, changing catheters and switching oxygen tanks.
Where are the parents?
They are sitting, bleary eyed and exhausted, in hospital emergency rooms, waiting for tests results to come back and wondering, “Is this the time when my child doesn’t pull through?” They are sitting patiently in hospital rooms as their child recovers from yet another surgery to lengthen hamstrings or straighten backs or repair a faulty internal organ. They are waiting in long lines in county clinics because no insurance company will touch their child.
Where are the parents?
They are sleeping in shifts because their child won’t sleep more than 2 or 3 hours a night, and must constantly be watched, lest he do himself, or another member of the family, harm. They are sitting at home with their child because family and friends are either too intimidated or too unwilling to help with child care and the state agencies that are designed to help are suffering cut backs of their own.
Where are the parents?
They are trying to spend time with their non-disabled children, as they try to make up for the extra time and effort that is critical to keeping their disabled child alive. They are struggling to keep a marriage together, because adversity does not always bring you closer. They are working 2 and sometime 3 jobs in order to keep up with the extra expenses. And sometimes they are a single parent struggling to do it all by themselves.
Where are the parents?
They are trying to survive in a society that pays lip service to helping those in need, as long as it doesn’t cost them anything. They are trying to patch their broken dreams together so that they might have some sort of normal life for their children and their families.
They are busy, trying to survive.
***
Sue Stuyvesant 10/15/96: Permission to duplicate or distribute this document is granted with the provision that the document remains intact. [Sue passed away in October 2003. Michelle passed away a week before she was to turn 18 in September 2005].
Special Needs Moms {A Look Inside}
What Ryan Gosling Might Say About Special Needs Parenting
I could look at Ryan Gosling all. day. long. When I came upon this “Special Needs Ryan Gosling” meme over at Adventures In Extreme Parenting I had to share it. Click on the button below to be taken to all the fun :)
{You can also join in if you want! She posts new ones weekly and adds a linky at the bottom of the posts.}
Autism Awareness Wreaths
How cute is this wreath from A Modern Day Fairy Tale? I will be searching for old puzzles at garage sales this Spring so that I can make one for our door. View her post here This cute ribbon shaped … Continue reading
Free Online Autism Conference {Autism Awareness Month}
A mom in one of my Facebook groups shared about this free online Autism conference. It’s a week long and has over 40 sessions for parents of children on the spectrum. Sessions Include: – How To Be An Effective Advocate … Continue reading
Free Resources For Families From Autism Speaks
Lucas was diagnosed as being on the Autism Spectrum on Tuesday and since then I have spent hours looking for resources to help me understand Autism and how best to help him. I came across some free resources offered by … Continue reading
{Chicago Suburbs} Special Kids Day
One of my friends in a Facebook group for moms of children with SPD posted about Special Kids Day and I just had to share with you that are local. Special Kids Day is a day where all children with … Continue reading
Cyber Monday Deal: 40% Off Soft Clothing {Perfect For Children With Sensory Issues}
{Thought I’d share this for all the parents of children who have sensory issues, like mine do} HAPPY CYBER MONDAY! Soft Clothing is having an incredible sale event on their website: 40% off storewide until MIDNIGHT tonight! Use code at … Continue reading